Support Our Research for PDCD
Your generous donations play a crucial role in funding essential research for Pyruvate Dehydrogenase Complex Deficiency. Together, we can significantly impact the lives of those affected and enhance our understanding of this condition. Join us in our mission!
URGENT NEED FOR RESEARCH FUNDING-DONATE TO KEEP HOPE ALIVE
Small‑molecule therapy research depends directly on donor support. Without your contributions, this critical work could stop entirely. Your gift today helps protect the progress already made and fuels the search for a future treatment.
where does your donation go?
Natural History Study
Small Molecule Therapy
Small Molecule Therapy
The Elizabeth Watt PDCD Research Fund provided your initial donations to Rainbow Babies and Children's Hospital to support the ongoing Natural History Study. This study continues at UPMC. If you're interested in enrolling your child in this important study, us or Dr Bedoyan at UPMC
Small Molecule Therapy
Small Molecule Therapy
Small Molecule Therapy
We are currently the only organization providing funding to ongoing research at UPMC aimed at discovering a small molecule, also known as a medication or pill, for PDCD. This research shows great promise and has the potential to impact individuals around the world. Join our webinar on December 2nd to learn more!
Travel Grants
Standards Of Care
Standards Of Care
We offer travel grants to families needing to consult a specialist for PDCD, which is a crucial step in ensuring they receive appropriate and safe care. Additionally, these travel grants help families reach research sites when participating in trials that lack established travel funding.
Standards Of Care
Standards Of Care
Standards Of Care
The Elizabeth Watt PDCD Research Fund is actively supporting ongoing efforts to establish documented standards of care for all patients with PDCD. In November 2025 the founders met with experts from 8 countries who worked tirelessly to develop an International Standards of Practice for PDCD.